The liminal space between hope and grief: The phenomenon of uncertainty as experienced by people living with relapsing-remitting multiple sclerosis

This study explores how uncertainty affects people recently diagnosed with relapsing-remitting multiple sclerosis (RRMS). Through in-depth interviews, researchers found that patients experience uncertainty as a state between hope and grief, influenced by bodily changes, shifting self-perception, and evolving social relationships. The unpredictability of MS symptoms leads to heightened anxiety, difficulty making decisions, and fear of the future. Understanding this uncertainty can help healthcare providers offer more personalized support and guidance, improving emotional resilience and coping strategies.

Managing uncertainty in chronic illness requires mental and emotional resilience. Practicing mindfulness, engaging in regular physical activity, and fostering strong social support networks can help improve overall well-being. While this study highlights the psychological burden of MS uncertainty, its findings suggest that structured counseling or peer support groups may help patients navigate this experience. Seeking professional guidance can provide additional tools to adapt to life with MS.